![]() ![]() She impressed me as someone who had an understanding of how to approach the disease in a holistic manner that aligned with my own healthcare philosophies, as I did not want to go the route of western medicine. She talked about The Great Plains Labs and why the testing used in Functional Medicine is so important for our community. Listening to blogtalk radio I heard nutritionist Nancy Guberti speak about these functional medicine tests. Early on, I'd heard about the testing that Pam Crane of Morgellons Focus On Health (site no longer active) was championing and felt that it was probably the way to go. The skin however, doesn't lie and told a whole other story for under it's surface, fibers and particles were clearly still present-multitudes of them. The only thing that hadn't cleared up was the hyper-sensitivity to my skin which I thought I was stuck with for the rest of my life, an unfortunate consequence of having Morgellons. Had I not been actively using a microscope to look at my skin during this period, I might have presumed I was well. ![]() Coming off the tail-end of the pharmaceutical seemed to stop all the symptoms of itching, biting and crawling for approximately the next 4 months. This confirmed my belief that I was dealing with Morgellons disease. Within two days of taking the Ivermectin, I watched in horror as fibers started to rise to the surface of my skin. Everywhere I placed my hand-held microscope the skin was visibly impacted with them. I staunchly felt, even before seeing fibers that I had Morgellons as my symptoms fit the profile exactly (crawling movement in my eyelids, eyebrows as well as the rest of the body, a drop in core body temperature with stinging and biting sensations all over the body-plus my skin was heavily burdened with what looked like black and brown particles. There were NO fibers visible in my skin in the previous months before taking the medication. It was during that first herx that the first fibers began showing up. This gave me great relief from the discomfort of what felt like fiberglass embedded in my skin. A dermatologist gave me Ivermectin which caused a Herxheimer (die-off) reaction and many of the black particles I'd been seeing with a scope under my skin, surfaced. Always wary of doctors, I tried to stay out of that loop but finally caved when my beloved one pressured me to seek help. I self-styled a protocol and was biding my time until I could figure out what my next step should be. Like most, I panicked bought a lot of unnecessary products-some toxic, then managed to pull myself back from the brink of actually hurting myself. Many of the skin photos in the photo galleries are mine. I've been moved to create awareness tools that help educate healthcare practitioners and the public about Morgellons Disease, as well as share what I've learned from this experience. Morgellons Disease Awareness - Artist and Morgellons sufferer, Ayla, journals her experience with the disease I'd like to introduce myself, I'm Ayla, a 63 year old artist and graphic designer who contracted Morgellons in Jan. ![]()
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